This is a great site for younger teens. There is useful information presented in an interesting and easy-to-understand way. For a simple definition, symptoms, treatments, and what you can do to prevent symptoms, click here. There is a separate section for parents.

This site offers general information on lupus and related diseases. The site is user-friendly, easy to understand, and provides FAQs, and links to lupus resources.

This site is very user-friendly, and provides easy-to-understand information about diseases. The pages on Lupus provide links as well.

Alliance for Lupus Research
28 West 44th Street, Suite 1217
New York, NY 10036
212-218-2840
866-WALK-ALR

This organization thrives on the sole mission to prevent, treat and cure lupus through extensive research. They will provide information to make the public more aware of this disease and possibly get more answers that will increase their chances of developing a cure for lupus.

American Academy of Dermatology
P.O. Box 4014
Schaumburg, IL 60168–4014
Phone: 847–330–0230
888–462–DERM (3376)

This national organization for dermatologists publishes brochures on skin problems such as acne, as well as those related to lupus. These brochures can be obtained by calling or writing the academy; they are also available on the organization’s Web site. The academy can also provide referrals to dermatologists.

American Academy of Orthopaedic Surgeons
P.O. Box 2058
Des Plaines, IL 60017
Phone: 800–824–BONE (2663)
www.aaos.org

The academy provides education and practice management services for orthopaedic surgeons and allied health professionals. It also serves as an advocate for improved patient care and informs the public about the science of orthopaedics. The orthopaedist’s scope of practice includes disorders of the body’s bones, joints, ligaments, muscles, and tendons. For a single copy of an AAOS brochure, send a self-addressed stamped envelope to the address above or visit the AAOS Web site.

American Autoimmune Related Diseases Association
22100 Gratiot Avenue
Eastpointe
East Detroit, MI 48021-2227
Phone: 586-776-3900
Phone: 800–598–4668 (free of charge)

The American Autoimmune Related Diseases Association (AARDA) is the only national nonprofit voluntary health agency dedicated to bringing a national focus and collaborative effort to the over 100 known autoimmune diseases through education, awareness, research, and patient services. AARDA provides free patient education information, physician and agency referrals, forums and symposia, and a quarterly newsletter.

Arthritis Foundation
1330 West Peachtree Street
Atlanta, GA 30309
Phone: 404–872–7100 or
800–283–7800 

The Arthritis Foundation is the major voluntary organization devoted to supporting research into arthritis and other rheumatic diseases, like lupus, and providing education and other services to people with rheumatic diseases. This foundation publishes free pamphlets on lupus and many other topics. Local chapters provide many services in the community, such as exercise classes, self-help courses, and support groups.

Lupus Foundation of America, Inc.
National Office
2000 L Street, NW, Suite 710
Washington, DC 20036
202-349-1155
800-558-0121
800-558-0231 (Spanish)
This organization is in pursuit of finding the causes and a cure for Lupus. Extensive research is conducted in order to discover better ways of diagnosing this autoimmune disease and treating it. Education and outreach programs will help educate the public, healthcare professionals, patients and their families about the disease. It also offers assistance to those at risk for this illness.

SLE Foundation
149 Madison Avenue, Suite 205
New York, NY 10016
Phone: 212–685–4118
800–74–LUPUS (745–8787)
www.lupusny.org

The SLE Foundation supplies literature on a variety of lupus-related issues to anyone who requests it. In addition, the foundation offers a referral service to knowledgeable lupus specialists. The foundation produces and distributes a newsletter several times a year and offers a variety of events and lectures by medical experts.

The National Institute of Arthritis and Musculoskeletal and Skin Diseases
1 AMS Circle
Bethesda, MD 20892-3675
301-495-4484
877-22-NIAMS (226-4267)
Clinical Trials
800-411-1222

The NIAMS, a part of the NIH, leads the Federal Government research effort in arthritis and other diseases that affect the muscles, bones, joints, and skin. The NIAMS supports research and research training throughout the United States, as well as on the NIH campus in Bethesda, Maryland. The NIAMS Office of Communications and Public Liaison provides health and research information for the public through the NIAMS Information Clearinghouse.